What do the members say about the Advanced Prostate Cancer Support Group?
Of course, members like the fact that they can:
Read the comments below.
Click for forums.
In their own words:
From a man with high risk disease under control ...
" My main motivation is to listen to those who are traveling the road before me, understand what it is like and get a picture of the likely routes for treating the disease. To arm me with the knowledge to better relate to my doctors as they seek to treat me."
... to a man with advanced metastatic disease:
" For a man with advanced metastatic prostate cancer The Australian Prostate Cancer forum is fantastic."
From a man in Chillago with no computer ...
"The contact I get with other men in my situation is wonderful. The information that has been sent to me is brilliant. Before this, I was so alone out here in facing this disease as it advanced."
... to a man in Sydney
"The teleconference does give valuable assistance to the advanced guys who participate. We cannot give medical advice and we are not psychologists but the peer interactions are helpful and the unsolicited comments of participants to this effect reinforce this fact."
And many others:
" I have listened to the stories of others and got a sense of just how serious it is and yet how much hope there is. How quality of life can be maintained and the constant drug battle to keep the disease suppressed can go on for many years. Some members have been battling the disease in excess of 10 years and still have quality of life. That gives new participants hope."
" To be part of a Community, with access to so much vital information in the one place, gives not only comfort to me but more importantly comfort to my family."
"This is a great site –the only one that addresses advance prostate cancer issues –keep up the good work!"
"This excellent information is empowering. I believe I have a road map into the future that I can feel confident about."
"I am delighted that this program, the forum, got up and running. I get a buzz out of it. I get a lot out of it. I think you've done a magic job."
"This Community is testament to the fact that, while many men have serious health problems, we can feel confident we are giving ourselves the best chance of the best quality of life into the future."
"A man with advanced metastatic disease is not alone!"
A final insight into the group's heart:
"The sardonic Australian humour and mateship concerning our predicaments can sometimes break through. That heals the soul."